This little boy’s skin falls away even at the slightest touch. Read his painful story
5 It Takes Three To Four Hours to Clean and Bandage Jonathan
Hearing Jonathan speak would surprise even the toughest of men. “As a kid I loved Pokémon’s, and back then I would imagine myself as one of them and I would defeat EB with all their powers.”
Jonathan’s daily routine consists of a daily bath where Tina has to pierce all of his blisters in order to prevent them from getting infected. His sores and wounds are cleaned and medicated before getting rebandaged again. He is on extensive medication where he has to take 4 pills a day which includes morphine to relieve the pain.