Girl with rare facial condition undergoes remarkable transformation through surgery

To 19-year-old Lilli Sim, hospital till now was like a second home. No! She wasn’t suffering from cancer or undergoing chemo, it was much worse than that! Lilli Sim was painstakingly undergoing reconstructive surgery for a completely deformed face.

Diagnosed with a rarest of rare diseases, Lilli Sim was one of those, one in 120,000 babies born with Craniofrontonasal Dysplasia (CFND) disfiguring her entire facial symmetry. It brought upon her one hell of a life filled with breathing problems, social stigma, bullying and constant medical intervention. Today this girl with the rare facial condition is thankful, to be on the road to recovery.

1 At birth she was given just three months to live

Lilli Sim from Moe in Victoria, Australia can’t really recollect much of her childhood. What she did know was that she spent a lot of time in the hospital, undergoing treatment for her rare facial abnormality named Craniofrontonasal Dysplasia. After several reconstructive surgeries, which definitely was an ordeal for little Lilli, doctors stated she is now going to be normal which is a miracle and you know why? Lili was also diagnosed with Cohen syndrome from birth and had just 3 months to live. Today she is twenty years old.

Lilli Sim from Moe in Victoria

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