This boy was suffering from a rare disease, Read what this woman did
God always sends help to people who seek it and it can be even a stranger who can come out of nowhere, with a heart full of compassion, and change the lives of people in an instant. A boy in Madhya Pradesh India suffers from a rare condition which has left him in a truly painful looking way with his head dangling downwards. This was until he got some unexpected help from far across the seas in England. Here is the whole story.
1 Mahendra Ahirwar and his unique medical condition
13-year-old Mahendra Ahirwar from Madhya Pradesh, India lives with his father and mother and siblings in a small village, but he is an outcast because of a very rare condition he suffers from. His head hangs 180 degrees upside down, thanks to a condition known as congenital myopathy. The condition has made the muscles in his neck so weak that they are unable to support the weight of the head and as a result, the head hangs to the side. Not only it is painful to watch him like this, it is painful for him as well. His parents have taken him to every doctor possible and the only option is surgery, which they cannot afford.
But a stranger from UK read about his plight and came forward to help.
2 Stranger from England who helped him
Help came from Julie Jones, who is from Liverpool, UK. She read about Mahendra’s plight and flew down to India to meet him in person. Mahendra had been treated before by Dr. Krishnan and he had suggested a specialist surgery that was too expensive for Mahendra’s father who just could not afford it. However, Julie set up a funding page for Mahendra and in no time, she collected the 9 lakh rupees required for the hospital consumables and medicines.
Dr.Krishnan and his team had decided to forego their fees for the operation. 34-year-old Julie who is a school career coordinator, said: “I have a son who is six and I just imagined what it might be like for him to live with a condition like that and not have the money to treat it. He looks so sad. His mum said he would be better off dead – it made me feel so emotional that his life is such a struggle.”
3 The operation and recovery
Dr. Krishnan had worked for many years in UK’s NHS and had decided to return to India so that he could work for the betterment of the people of his country. People in England and many other countries donated more than 10,000 pounds for Mahendra’s surgery.
The surgery took place at Delhi’s well-known Apollo hospital. Dr. Krishnan opened up the front part of Mahendra’s neck and started on an operation that lasted 10 hours. They took bones from the pelvis to strengthen the neck and then used a metal plate to hold the neck secure. His neck will remain in a neck brace to give it support during the healing period.