This mom was only 23 weeks pregnant when doctors told her this

If there is a will, there is a way and our story this time proves that if you have faith, things always go right. A couple was given a bad news that their unborn son was suffering from a rare disease that caused his brain to grow in a bizarre fashion. The couple though dejected, decided to complete the pregnancy term and give birth to the baby. Find out the condition that he suffered from and the ordeal his parents went through.

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1 The miracle baby- Will

When Alyssa Reidhead found out that she was pregnant, both she and her husband Ben were over the moon. They were so happy that they immediately told their family and friends and shared their happiness and joy with them. At 23 weeks of pregnancy, Alyssa was at the doctor’s clinic to get her check-up done and to know the sex of the baby as they planned to name the baby ‘Will’ if it was a boy. But when the ultrasound report came, their doctor brought extremely bad news for the couple. Their baby seemed to suffer from a rare disorder that caused his brain to grow outside the skull. The baby was grimly diagnosed with encephalocele, even before birth. The doctors said to the couple that there was very little chance of their son surviving even in the womb, let alone taking birth.

Alyssa Reidhead with her baby

Image Source: www.dailymail.co.uk

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2 The rare condition that Will suffers from

Encephalocele is a rare disorder that affects babies while in womb. It is a neural tube defect that affects the brain. Neural tube is a tube that closes during the 3rd and 4th weeks of pregnancy to form the brain and spinal cord.

Encephalocele is a sac projection of brain that forms when the neural tube doesn’t close properly. The result is an opening in the upper part of the skull or at the back of the skull and brain grows in that opening in the encephalocele sac. 1 out of 10,000 babies born every year in United States is born with encephalocele. The condition is mostly fatal for the baby as most babies die in the uterus or minutes after being born. Sometimes the encephalocele is also found in the nose or forehead and is not detected easily.

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Encephalocele is a rare disorder

Image Source: www.cdc.gov

3 How is baby Will doing?

The Reidheads started to plan for a funeral instead of a baby shower as soon as they got the diagnosis. When the time came, the baby was delivered via C-Section surgery and he was 6lb 12oz and as soon as doctor made him cry, the baby started crying showing the spirit to live as his name Will suggested. But their happiness was short lived as doctors found that the baby was missing the back part of his skull, a condition known as cutis aplasia.

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cutis aplasia

Image Source: www.dailymail.co.uk

The brain is now just covered with a membrane and not with a thick part of the skull. The baby is doing fine for now and though the doctors are not sure how to keep the baby’s head safe, but as of now are keeping him on his stomach and Will has a tough road ahead. Ben’s brother set up a GoFundMe page to cover for the couple’s costs of hospital and baby care supplies and clothes.

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sleeping baby

Image Source: www.dailymail.co.uk

The couple is happy to have him and we really wish that baby Will survives and prospers.

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